Today I started reading another blog by another HIE Mum telling the story of her son Elijah. Looking at his baby pictures and reading about him, he reminds me a lot of Joshua. With prominent ridging on his head, microcephaly and high muscle tone. Not surprisingly, I can also relate to a lot of the things his Mum has said. I wanted to share this particular entry of hers now:
I am sharing this one because I do get excited by each little thing, like him pulling his feet up in his hands, like him passing an object from one hand to another.. little things that are no big deal to most people, but a huge freaking deal to me because I am fully aware that he may never have been able to do it, and that each thing he CAN do is a small miracle in itself. I've excitedly shared things with people in the past and had them respond with something like "Yeah, all babies do that". WRONG. Not ALL babies do that. I take nothing for granted, and each time I see my son advancing his skills and learning something new, I am overcome with joy, with excitement and with raw emotion. When he started smiling at me, I would literally tear up with emotion. The first time he laughed I nearly bawled my eyes out. Doing something like looking for a toy he has dropped and picking it up himself may seem like no big deal to most, but these things fill me with immense pride in my little boy, who is amazing in everything he does.