Monday, December 6, 2010

Baby group and our first "contraption"

So today was the last Baby Group of the year at the Children's Development Team.  It will start back up again late January.   I love going every Monday, so I will miss it!  We are going away anyway though, so even if it was on we'd be missing a month.
I took some photos today of Joshua doing some of the things at Baby Group.  They have also loaned us a corner chair.  They talked about it since he first started going, and now they decided to send it home with us.  They told me that this is not supposed to be to help him sit, but rather to support his body so that he is able to do things with his hands and arms.  I asked them what the difference is between sitting him in the bumbo with the tray on, or the high chair with the tray on, and they told me that the corner chair positions his shoulders nicely in a way that is best for doing things with his hands.  The way they explained it to me is that they need to develop their skills using their hands while in a seated position, and if we waited for him to be sitting properly before trying to do this work with his hands, then it may end up that his hands are behind where they should be.  So even if he ends up behind with his sitting etc, hopefully he can still be on track with his hands.  Well, that is what they said and I agreed to take it and use it, it can't do any harm anyway.  He is just meant to use it for short periods (or as long as he will tolerate it) a couple of times a day.

Sitting in the big dish - He likes to spin FAST!

Trying out the corner chair

On the Scooter Board. 

Having fun on the platform swing

In the corner chair at home and not overly thrilled!

Playing with some toys in the corner chair at home

Wednesday, December 1, 2010

Everything counts

Today I started reading another blog by another HIE Mum telling the story of her son Elijah.  Looking at his baby pictures and reading about him, he reminds me a lot of Joshua.  With prominent ridging on his head, microcephaly and high muscle tone.  Not surprisingly, I can also relate to a lot of the things his Mum has said.  I wanted to share this particular entry of hers now:

http://elijahland.com/2008/12/i-didnt-know.html

I am sharing this one because I do get excited by each little thing, like him pulling his feet up in his hands, like him passing an object from one hand to another.. little things that are no big deal to most people, but a huge freaking deal to me because I am fully aware that he may never have been able to do it, and that each thing he CAN do is a small miracle in itself.  I've excitedly shared things with people in the past and had them respond with something like "Yeah, all babies do that".  WRONG.  Not ALL babies do that.   I take nothing for granted, and each time I see my son advancing his skills and learning something new, I am overcome with joy, with excitement and with raw emotion.  When he started smiling at me, I would literally tear up with emotion.  The first time he laughed I nearly bawled my eyes out.  Doing something like looking for a toy he has dropped and picking it up himself may seem like no big deal to most, but these things fill me with immense pride in my little boy, who is amazing in everything he does.